In consideration of our week’s focus, how would you generalize the impact parents/caregivers have on the “normal” development of children? Then, in consideration of the quotation above (i.e., Family-related and disease-related variables appeared to influence quality of life in children with [neurofibromatosis]), what are your thoughts? Why might the child’s quality of life be impacted by familial and disease-based variables?
Reference
Oostenbrink, R., Spong, K., de Goede-Bolder, A., Landgraf, J. M., Raat, h., & Moll, H. A., (2007). Parental reports of health-related quality of life in young children with neurofibromatosis type 1: Influence of condition specific determinants. The Journal of Pediatrics, 151(2), 182-186.
